Marc and I went to MD Anderson yesterday for lab and MRI; the MRI didn't get done. Marc has become very claustrophobic after having numerous MRI's and was not able to tolerate it this time. We saw the Dr. today and opted out of the clinical trial as the side effects of the drugs posed too much risk at this point. Marc can opt back in at any time but right now he just is not feeling well enough to participate. We are afraid the side effects might outweigh the benefits of the treatment. At this point we had 3 choices: 1 - continue the chemotherapy at the
standard dose, taking it 7 days a month; 2 - taking an increased dose of the standard chemotherapy and taking it 7 days on and 7 days off (this is the drug that he has previously taken but at a higher dose); or 3 - participating in the clinical trial. We chose to enter the treatment with the increased chemotherapy dose and may decide to enter a clinical trial at a later date.
Marc is scheduled to go back Thursday of this week for an anesthesia consult and will have the MRI on Friday using sedation so that he can get through the entire procedure. We are praying that the tumor hasn't come back. He seems to be having more problems with his speech of late but we are hoping that is because he is off the steroids and not from tumor growth. Friday's test will tell.
I will post again after we have the results of the MRI. Marc and I want to thank you for your continued prayers and support.
2 comments:
Let's pray that the outcome is a good one. Miss you guys and will continue to keep you in our prayers. Love always. Silly & Doug
We are thinking of you and have you in our prayers.....Hey , that crazy cousin, alias Thelma, alias Silly, alias Pris...is going to be here in Kansas the end of the month....I will try to keep her under control....do you think???HEEEEE! We send much love and hugs...to all of you....Your sis Jill and Byron
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