Being home is good. Marc is slowly improving but still very uncomfortable and not resting well. He has a lot of swelling in the right side of his head and face and it really bothers him. I am going to remove some or all of Marc's staples tonight to see if that doesn't help him rest better.
We went to the radiation oncologist yesterday. They put a mask, kind of like Jason in the horror stories, except it is a formed mesh that covers his head and face and he has to lie very still while they do a CT scan which takes about 20 minutes. Well, he didn't tolerate it well at all yesterday so we went back today. The Dr. gave him a prescription for a tranquilizer to take about an hour before the procedure and told him he would probably need to take it every time because when they start the radiation therapy he will be in the mask each time he has a treatment. It went better today. They do the initial scan to determine the exact area to be radiated.
Next week will be a very busy week for us. Monday Marc has appointments with his oncologist and his primary care provider. Tuesday we go to MD Anderson in the morning and see the neurosurgeon in the afternoon. It seems like we have something on Wednesday too but I will have to check the calendar to be sure.
I will post more next week after our appointment with MD Anderson.
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4 comments:
Marc, I know how uncomfortable those plastic masks are. I still have mine which I fully intend to burn in my outdoors fire pit over drinks later this year. You’ve got to just close your eyes, let them “cinch you down” and let your mind take you to a happy place and time in your life. Concentrate on that. (I know how it feels to be claustrophobic) I finally got to the point where I could take a cat nap while being treated.... It isn’t easy but I know you can handle it. Try to take it easy on the help would ya :-)
Keep the faith, Leon.
Hey, guys ....thinking of you both....hope you are getting much needed rest...Hang in there....you are strong .....keep up the good work and our thoughts and prayers are with you.....Love you lots your sis Jill and Byron
Hey Marc, Just think about being the lone ranger. Remember when we went to the sandpit to shoot fireworks and caught the weeds on fire. You saved the night. It's not everyone that can shoot roman candles off in a van.. You can do anything you have too. We love you and if you need a laugh just let me know. You can beat this setback cause when we were made they did make juke. Love you lots Silly & Doug
Good Luck today....thinking of you and will check later to get your update....love to you both....Jill and Byron
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